First of all, thank you SO much for all your birthday wishes. I cried lots of tears reading my sister's post along with all of your responses - they meant a lot to me!! I did have a great day and ended it with dinner with my boys and our new nanny at a wonderful restaurant.
On a sadder note, we dealt with the first anniversary of my Mom's passing on October 31. I knew it would be sad, but I didn't expect it to hit me so hard again. Grief takes funny turns every now and then, doesn't it. Mom, I hope you know how much we all loved you and how much we miss you now!!
Now for an update and the reason for my leaving the blog empty for so long. I had an appointment last week with a radiation oncologist, on the advice of my chemotherapy oncologist. The purpose of the meeting was "just to meet him" so that he had a face to put with a name in case I ever need him. But, I've also been dealing with two issues that are related to tumors that are behind my chest wall - I've had trouble swallowing food and my voice has been changing and getting gravelly when I read to Kurtis. I mentioned these two issues to the doctor and he immediately said that he could fix those issues with just one big blast of radiation to those tumors. So, before we knew it, I was booked in for Friday for a radiation treatment as he just happened to have some space open.
Well, although the radiation went well at the beginning, it has taken it's toll on me since. I'm very very fatigued - those arms and and legs feel like they weigh 60 lbs each! And actually, that's probably what they do weigh as I'm dealing with some fluid retention in the legs and I have tree-trunks for legs right now.
I'm also very restless right now - pacing back and forth as I don't want want to sit. That's probably from the steroid they put me on when I had the radiation. BUT.. just received notice from the doctor to discontinue the steroid and to continue the diuretic (in order to reduce swellling in the legs). I am starting to feel better as well now....this post has been written over 3 days and now that we're into day 3, I can finally finish it.
My sister just left after coming over to visit and treat me to a "homemade" spa - mani, pedi and massage... wow - what a wonderful treat! Thank you Lisa!!
I'll try to update more later, but for now, let's finally POST this piece!! I obviously missed National Down Syndrome Awareness Week and the pieces I wanted to write about... c'est la vie. Hopefully I'll find time to do them later.
Peace and love,