I wasn't sure how to title this post... so I left it blank. How to summarize in two words how I'm feeling right now? Just can't do it.
We found out the results of the CT scan I had done last week, and again, they weren't good. The tumors have not shrunk at all. Nada... nothing. And the cough I developed last week isn't due to a cold or asthma, it's because of fluid building up in my lung again.
So Plan B is done too. My doctors here are going to contact the expert again at Mount Sinai to figure out next steps. Right now, I don't know what that will be... perhaps another type of chemo or perhaps participation in a clinical trial (new chemos). My regular oncologist was on holidays so we had a different one and she's not a sarcoma expert and hadn't checked with the Mount Sinai doc before. Hopefully she'll be able to contact him this week so we can figure out what we do next.
On a more positive note, the tumors haven't grown. This may be due to the chemo keeping them in check or it may be because the tumors are incredibly slow growing. We don't right now which one it is.. but I guess we'll find out once we stop chemo for a bit. I pray it's the second actually as that gives us more time to find something that will work.
Since it seems that conventional medicine is failing me right now, I'm looking towards unconventional options. I'll be starting intravenous vitamin C therapy in the next week or so with a naturopathic doctor in Toronto. The Canadian Medical Association Journal published an article recently about some successes with i.v vitamin C. Of course, there is no guarantee - but then there was no guarantee with chemo either. And the good thing is that there is no down side - no negative side effects. Even if it doesn't reduce the tumors, the benefits of increased energy and a decrease in pain will make it worthwhile for me.
It's been a very very tough couple of days. When I decided to do this blog, I promised myself that I would be honest. That isn't to say that I would hang everything out there - it is the internet after all and not everyone needs to know ALL the details. But I said that I would be honest with what I'm going through and generally, what I'm feeling. So... here it is...this is the toughest thing I've ever been through. I'm feeling hopeless and scared stiff. Take it one day at a time as my sister reminded me. Right now that's all I can do. I wish I had some fitting Bible passage or a quote from a book or devotion that expressed everything I'm feeling right now. I've never been good at recalling quotes from any source (I can't even tell jokes properly :) ) I know I've read many inspirational things over the past 8 months, but right now I'm drawing a total blank. The only thing that comes to mind is the well known Psalm 23: "Even though I walk through the valley of the shadow of death, I will fear no evil, for You are with me." No matter what the future holds, I know that God is with me and is holding me close.